PANDAS & Lyme: My Recovery and 8 Years of Misdiagnoses

Who Am I?

Okay, so with a weird name like “The Dreaming Panda,” you’re probably wondering who I really am.

Unfortunately, I can’t tell you. 🙂

After much debate, I chose to make this blog anonymous so that I could share as much as possible while maintaining some sense of privacy.  I’ve been through far too much, so I decided I was going to lay everything out here in the hopes that maybe some of it can help someone else going through the same thing.

All I can tell you about myself is that I’m twenty-two years old, I’m a senior in college, and I’ve had PANS/PANDAS for at least ten years.  I have no formal medical training, but I have a “degree” in Google research and encounters with 20+ doctors.  When I’m not too sick, I like running, biking, cooking, and hanging out in various coffee shops around town.  And obviously, I love to write.  You can call me Iris.

I chose to be The Dreaming Panda to reflect my diagnoses and also my hope of getting better. The “Panda” part is because I have PANDAS.

The “Dreaming” part came from the fact that hypersomnia was one of my worst symptoms when I started this blog. I used to fall asleep all day long no matter how much sleep or caffeine I had—standing up, sitting down, driving, taking notes, having a conversation, etc.  I was never sure if I was conscious or not, so I pretty much existed in a dream world.  Thankfully, this symptom disappeared after two IVIG treatments.

The truth is that most people who know me have no idea what I’ve been through. I don’t really talk about my illness in “real life”—I save it all for this blog. Even if you don’t know who I am or what I look like, I hope you feel special for knowing things about me that I won’t tell anyone else.

Comments on: "Who Am I?" (2)

  1. Carolyn BD said:

    Thanks for sharing your experiences. I just discovered this blog after searching for side effects for meds my daughter is going to have to start tomorrow. She’s 9 and was dx with PANS a few years ago. Have read a few of your posts and will continue to read on. I’m so glad you’re writing this.

    Like

    • Hi Carolyn, thanks for your comment! I’m glad you’re enjoying my blog. I wish you and your daughter all the best on this healing journey. 🙂 Let me know if there’s anything else I can do for you.

      Like

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